Ghana has joined the global community in commemorating World Down Syndrome Day, as advocacy groups raise concerns over a growing but often overlooked challenge—loneliness and social isolation among persons living with Down syndrome.
The event, held in Accra, brought together parents, caregivers, advocates, and the Minister for Gender, Children and Social Protection, Agnes Naa Momo Lartey. Participants embarked on a march through the principal streets of the capital to raise awareness and promote inclusion.
Observed under the theme “Together Against Loneliness,” the commemoration aimed to challenge societal stereotypes and advocate for a more inclusive environment for persons with Down syndrome.
Advocates stressed that beyond health and economic difficulties, many individuals with Down syndrome face significant social exclusion, limiting their participation in everyday community life.
They also highlighted the burden on families, many of whom struggle with the high cost of managing associated health conditions. According to the groups, more than 40 percent of children born with Down syndrome have congenital heart disease, yet treatment for such conditions is not fully covered under the National Health Insurance Scheme (NHIS).
Founder of the Down Syndrome Association of Ghana, Agnes Teiko Nyemi-Tei, called for expanded NHIS coverage to include conditions associated with Down syndrome. She also urged authorities to ensure that persons living with the condition are adequately registered and supported under national health programmes.
In the education sector, concerns persist over the gap between policy and practice regarding inclusive education. While some children with Down syndrome are enrolled in schools, advocates say many lack the necessary support systems.
They point to inadequate teacher training, a shortage of specialised learning materials, and limited classroom support, all of which contribute to the marginalisation of such students. Families further report that their children are often excluded from social activities, friendships, and broader community engagement.
Madam Nyemi-Tei also called for specialised training for teachers in disability education, as well as the deployment of teaching assistants to support inclusive learning in classrooms.
Responding to the concerns, the Minister for Gender, Children and Social Protection, Agnes Naa Momo Lartey, reaffirmed government’s commitment to improving support systems for persons with disabilities. She cited existing social protection programmes and outlined plans to strengthen inclusion efforts across the country.
Story by: Rebecca Lartey
